Entyvio Infusion # 3

I'm free!

I’m free!

It has come to my attention that my busy schedule has kept me away from writing about my experience with Entyvio. On August 6th, I went in for my final loading dose and walked away without an appointment scheduled until October 1st… woo! From here on out, my infusions will only be every 8 weeks.

By now, I’m getting used to the routine, but it will be a while until we know if the medicine is truly working. In the mean time, I have been experiencing some IBD related symptoms. Until more tests have been run, it is unclear if I am in a flare at this time. However, I’ve really been struggling with nausea, abdominal pain, joint pain, and diarrhea these last couple of weeks. Thank goodness for zofran and pain killers!

Meet George! I'm still not sure why... but I've named every infusion pump and pole George

Meet George! I’m still not sure why… but I’ve named every infusion pump and pole George.

I still haven’t experienced many side effects with Entyvio, but I am keeping a record of how I feel after each infusion to help me assess this to my best ability. Joint pain really seems to be the only post-infusion issue for me.

I am scheduled to see my gastroenterologist on the 18th of this month, and am ready to make an action plan for the future as well as address the issues discussed here.

How are you? Where are you in your health journey right now?


2 Comments on Entyvio Infusion # 3

  1. Tanya Anderson
    September 11, 2015 at 7:56 am (2 years ago)

    I seem to be finally adjusting to remacaid. They have me on the strongest dose with infusion every 6 weeks. Taken a year to get where I am and what a journey. Some side affects between this and cancer med but that’s ok. Unless it gets absolutely unbearable this journey will continue. I like your updates. You do encourage and uplift while keeping it real. Praying for you today.

    • Mallory
      September 11, 2015 at 8:30 am (2 years ago)

      Thanks, Tanya! That’s what I aim to do. I want to be open and honest, but at the same time don’t want to bury others in negativity! I hope you are well!

%d bloggers like this: